Mapping User-Controlled Research in Health and Social Care

INVOLVE, an organisation working to increase user involvement in health, social care and public health research, carried out a survey of user-controlled research projects, in collaboration with Shaping Our Lives, The Centre for Citizen Participation (Brunel University) and the Social Perspectives Network. The aim of the survey was to gather information about all user-controlled research projects since 2002.

Survivor Research’s role was to gather information about user-controlled research from Black and Minority Ethnic communities in mental health. You can read the comments we made here.