Dancing to Our Own Tunes

This work, commissioned by the National Survivor User Network (NSUN) in collaboration with Catch-a-Fiya, explored what user involvement means for service users/survivors from Black and Minority Ethnic (BME) backgrounds. Research in the field suggests that there is an "under-representation" of service users from BME backgrounds in user involvement initiatives. What have been some of the experiences of BME service users/survivors of “being involved” in mainstream user groups and in policy-driven involvement initiatives? Does involvement constitute positive change in the way in which people from BME communities experience mental health services?

The report, Dancing to Our Own Tunes, was launched on 24th March 2009.  Following the report, a charter and guidelines for partnership working in BME mental health user involvement was produced. A review of the work was undertaken in 2011. Jayasree is currently working with NSUN to take the recommendations forward, including mapping BME user-led work across England. Download the third reprint of the report.